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Japan's ALS community is ready to become research partners, nationwide survey suggests

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Summary

People living with ALS and their families in Japan are eager to help shape research on the disease, even though most have never heard of patient and public involvement (PPI), according to a study published on Oct. 30, 2026, in Research Involvement and Engagement.

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  1. Phys Center Factuality: Mostly factual US
    Japan's ALS community is ready to become research partners, nationwide survey suggests

    People living with ALS and their families in Japan are eager to help shape research on the disease, even though most have never heard of patient and public involvement (PPI), according to a study published on Oct. 30, 2026, in Research Involvement and Engagement.

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